I have written this list to inform other KC patients of how I reversed my keratoconus (KC) condition from severe to
moderate. In 1996, I was beyond the
severe stage in my left eye and was advised to put myself on the waiting list for a corneal transplant. I searched everywhere for answers (even writing a 75 page paper), but everything I read told me that KC
is degenerative and only gets worse.
It may have periods of inactivity and then periods of rapid progression,
but I never heard of it actually healing.
Till this day, I still have yet to encounter any other KC patient that had as much regression as me. However, if you have or know of anyone who did, I’d love it if you emailed me about it. When I began my “re-education” with my eye doctor, he told me that he thought KC was controllable. This really made
it a condition instead of a degenerative disease. All of my experiences support this belief.
For those of you who appreciate detail, I have written my whole story, but here I will succinctly highlight the things I did that produced results in reducing KC. Please understand that I am not a doctor and have no medical background.
I am not trying to diagnose or give advice, but I am hoping that my success will possibly be the keys for more research
to help others.
Over the years, the patients who have typically contacted me are advanced cases and already very familiar with KC. Therefore, I am not going to cover any background on the disease itself. If feel you want to learn more, I suggest visiting http://www.kcglobal.org.
Things that I Personally Observed Improve Keratoconus
The first two items actually caused my KC to recede. I think the rest
of the list is probably more helpful in stabilizing KC.
1. Plant-based
diet rich in raw produce: After eight months of switching to a diet consisting
of mostly raw produce, my corneas mysteriously flattened. This can be seen in
my most recent corneal topography (which is like an elevation map for the eye). I have added a page devoted to diet because I receive so many questions, and the things I do are
very unusual.
2. Flat
fit, aspheric rigid gas
permeable lenses: Academic guidance currently teaches the doctor to fit the contact according to the steepest part
of the eye. I was originally fit with this traditional method. I had no problems with the mild cone, but I had great pain in the advanced cone and could not tolerate
the lens beyond three hours. I later learned that the steep lens was fitting
like a suction cup on the eye and trapping tears. The pain I was feeling was
trapped acidic tears burning my eye. I currently wear a superior intermediate
alignment (flat fit), which means that the contact is fit according to the flatter healthy portion of the cornea.
3. Relaxation: My doctor took photos of my cornea before and after I tried visual biofeedback, and
there was a distinct improvement. The biofeedback machine included a beeping
noise that indicated when my ciliary muscle was spasming. The point of the exercise
is to breathe deep, relax, and decrease the frequency of the beeps. I also observed
improvement in another patient’s before and after pictures after deep breathing.
Yoga, massage, breathing, meditation, and anything else similar are
probably beneficial in containing KC.
4. Low
powered reading glasses: My doctor believes that KC patients have weaker
accommodative ability that can be assisted through low-powered reading glasses being worn over the RGP lenses when near-point
work is being performed. I have been wearing them for several years. My doctor was actually able to reduce his own myopia while he was in optometry school by doing this and
increasing participation in sports that require him to look in the distance (far-sighted) such as golf.
5. Eye
exercises: The first time I heard about eye exercises, I saw an
article in the newspaper on Meir Schneider who had previously been blind but restored his sight enough through eye exercises
so that he was able to obtain a driver’s license. His DVD, “Yoga For Eyes,” came with an eye chart, so I
was able to test my before and after vision. At the end of the first session,
I was able to read one line higher on the eye chart. My doctor is a staunch advocate
of eye exercises.
Things that Probably Help Keratoconus
These are other things I do. I suspect that they help KC, but I have no
proof.
1. Supplements: Improved nutrition clearly improved my KC. (See
my corneal topographies.) If this is
true, I would think supplementing with vitamins and minerals would possibly help. However,
not all supplements are equal. I discuss what I personally take in diet.
2. Exercise: Everyone has probably heard about several of the benefits of exercise. KC is a reflection of the whole health of the body, so anything that is good for the body should also help
KC. Since certain types of exercise can be stress relieving, this can also assist
KC, which is exacerbated by stress. Since this is a topic I have studied with great interest, I have devoted a page discussing what I have learned about exercise and what I specifically do.
3. Sleep: I think this is probably the second most abused component of health (right behind
diet). During sleep, the body switches to detox mode. Have you ever noticed how you sneeze more in the morning or if you have a cold the symptoms will be worse
in the morning? This is your body working to remove toxins found the night before. Sleep is also a time for the body to regenerate and make any necessary repairs. If you’re hoping to heal KC, hopefully you can see why increased sleep is crucial.
My greatest motivation for this site is to spread the word about
my success to help other KCers and foster viable options to treat this disease. Please
see my wish list to see if there is something you can do to help.